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These sponsors helped us raise $2,640 for The Children’s Tumor Foundation:
Mr. Jeff Scheller |
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Ms. Florence Anne Kohut |
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Mr. Aiden Long |
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Mr. and Mrs. Bruce C. Neary |
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Mr. and Mrs. John H. Oostdyk |
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Mr. Albert J. Stahl |
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Mr. and Mrs. Robert H. Speight |
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Mr. Roy Larsen |
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Mr. and Mrs. Bruce V. Koczman |
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Mr. and Mrs. James W. McCombs |
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Mr. Richard D. Kroll |
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Mr. Greg Cambeis |
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Ms. Kathleen Sommers |
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Ms. Katy Laundrie |
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Ms. Amy Zambrano |
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Mr. and Mrs. Richard Gifford |
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Mr. Rob Moll |
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Mr. Gary Gnidovic |
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Mr. and Mrs. Dan Carver |
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Mr. Richard Heffner |
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Ms. Dee Lamorte |
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Ms. Judy Scheller |
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Mr. and Mrs. Philip Benyola |
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Ms. Heidi Peck |
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Mr. and Mrs. Carleton W. Westerlund |
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Ms. Cherie Carl |
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Mr. and Mrs. Nicholas P. San Filippo |
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Mr. and Mrs. Robert A. Mack, Sr. |
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Mr. and Mrs. John J. Bogosian |
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Mr. and Mrs. Roger L. Faulkenbury |
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Mr. and Mrs. James J. Jensen |
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Mr. and Mrs. Michael Trapani |
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Mr. and Mrs. Mark Smith |
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Ms. Sara Mummolo |
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Dr. and Mrs. Gary S. Cuozzo |
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Mr. Tony Papalia |
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Here is the summary of another study that I’ll be including in my letter to The Children’s Tumor Foundation to encourage them to better educate and support families in regard to ALL possible outcomes of this debilitating disease.
NF1: Psychiatric Disorders and Quality of Life Impairment
Neurofibromatosis type 1 (NF1) is often associated with psychiatric disorders, which are more frequent in NF1 than in general population (33% of patients). Dysthymia* is the most frequent diagnosis (21% of patients). There is also a high prevalence of depressive mood (7%), anxiety (1-6%), and personality (3%) disorders. The risk of suicide is four times greater than in the general population. Bipolar mood disorders or schizophrenia appear to be rare. The impaired quality of life associated with NF1 may play an important role in the development of psychiatric disorders. Quality of life assessments may help to identify a population at high risk.
*Dysthymia — depression; despondency or a tendency to be despondent
Thanks again friends! May your generosity be returned a hundred-fold!
It’s an honor to be on the list. I pray the money will help find a cure!
Cherie
Cherie,
Thanks so much! We met some inspiring patients and parents at the marathon and will keep up with their work. Many blessings~
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