It’s official. Mike and I have registered for the Long Beach Marathon to raise money for neurofibromatosis (NF) research. Now his six cycling friends and my one jog/walk buddy need to sign up. Mike has been training faithfully, while his mother has, well, been doing her best. Yesterday, I walk/jogged 6-7 miles, I’d guess.
The race is October 12, but you can sponsor us now. To sponsor Mike, click here. To sponsor me, click here. Be sure to watch the short video too.
Gabe was diagnosed with NF when he was 6 months old. Some of his closest friends didn’t know he had this disease, even though he lived with all these symptoms:
- cafe-au-lait spots
- skull deformities
- 100+ pea-sized sub-dermal tumors
- a spattering of topical skin tumors
- Attention Deficit Disorder
If you loved Gabe or were impacted by him and/or his work, why not support us in this effort? He is our NF Hero. Perhaps you’d even like to join us on October 12. If so, register here and let us know. Our goal is to raise $5000. We’d like to see more research into the link between NF and mental illness and will be communicating this desire to the Children’s Tumor Foundation.
Let me know how I could do this through an off-line method, okay? I’d like to contribute.
Our bodies… how they both lead us into blessing and suffering. Gabe’s did that too, for him and for others.
I’ll mail you the form. Thanks : )
Glad to see you are running with the team. Good luck with Long Beach. Also, there has recently been a group formed on Facebook.com if you or Mike use the site and are interested in connecting with other team members around the country. http://www.facebook.com/group.php?gid=31311831612
Keep fighting the good fight!
My race partner and I did 7 miles yesterday, so we’re feeling good. Neither Mike nor I are on facebook, but my husband is. He’ll be a volunteer so I’ll tell him.
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