It’s official. Mike and I have registered for the Long Beach Marathon to raise money for neurofibromatosis (NF) research. Now his six cycling friends and my one jog/walk buddy need to sign up. Mike has been training faithfully, while his mother has, well, been doing her best. Yesterday, I walk/jogged 6-7 miles, I’d guess.
Gabe was diagnosed with NF when he was 6 months old. Some of his closest friends didn’t know he had this disease, even though he lived with all these symptoms:
- cafe-au-lait spots
- skull deformities
- 100+ pea-sized sub-dermal tumors
- a spattering of topical skin tumors
- Attention Deficit Disorder
If you loved Gabe or were impacted by him and/or his work, why not support us in this effort? He is our NF Hero. Perhaps you’d even like to join us on October 12. If so, register here and let us know. Our goal is to raise $5000. We’d like to see more research into the link between NF and mental illness and will be communicating this desire to the Children’s Tumor Foundation.